I’m a certified genetic counselor and the Founder and CEO of My Gene Counsel. Before starting this company I was the founder and director of the Cancer Genetic Counseling Program at Yale for 18 years, and I was also a plantiff in the 2013 BRCA gene patent case that went to the Supreme Court. Why did you start My Gene…
World: What’s good?! This episode, I discuss a little-known side effect of Tamoxifen known as crashing fatigue. Tune in to find out what it is, why it happens, and how I manage it! The CanSurvivor Podcast is expanding! Welcome, Joe Coutcher to the team! Upcoming Events: 1) Making Strides Wrap-up Party: June 12, 2018 740 Commerce Dr, Perrysburg, OH 43551 RSVP: Heidi.Nafziger@cancer.org or call…
Life after a hysterectomy is one of the many challenges I have had to overcome. Three years post operation, and I had been fighting a losing battle. I honestly was beginning to feel like there’s was no end to the side effects the hysterectomy was causing to my body and life. My life was starting to become overbearing because of…
This pretty much sums up the entire process of dealing with cancer: I know, I know, I’m only two months into this thing. I’ve been doing my best to stay positive, and really grab this thing by the horns and take it on. Today was one of those days where I couldn’t win the fight against insurance. Spending all morning…
One of the first moments I remember about my BRCA journey was feeling isolated and alone. I felt like no one around me understood my struggle. As the years passed, I was able to find and curate my very own BRCA community. I no longer felt alone, but in the back of my mind, I remembered how lost I felt…
Dr. Dec is a board-certified plastic surgeon specializing in breast reconstruction and microsurgery and treats many patients affected by a BRCA mutation at the New York BRCA Center. We met after a patient referred him to check out the resources available at BRCAstrong.org. A unique aspect of Dr. Dec’s practice is scarless breast reconstruction. In this technique, the mastectomy and…
Well we haven’t actually officially met .. yet!! About 7 months ago after finding out that I was BRCA 1 positive, I came to the internet to find support. I started on Facebook and searched for groups relating to BRCA. I wasn’t alone in this, I had my cousin and The Breasties but I wanted to meet more women and…
My journey as a previvor has taken me beyond my expectations, and for that, I am truly blessed! Through BRCA Strong I have been able to share my experiences as a previvor. Now, I would like to share with you all what’s next in store for me and that is UnBRCAble Boutique! I am finding that more and more women…
