My BRCA journey began when I was 28. My mom had had breast cancer when I was 19 and she and one of my siblings had already tested positive for BRCA2. I am a huge baby and scared of blood tests so when I was 28 and I learned from my mom’s oncologist that there was a spit test, I decided to dive in. I also tested positive. I was single at the time and knew I wanted to get married and have babies and breastfeed future babies. So I started surveillance. I was watched for ten years. Mammograms, breast MRI’s, two breast exams a year by my gynecologist and an oncologist and finally, at 38, I am ready to say goodbye to my boobs. I got married at 33, had my first son at 34 and my second son at 36. I got to nurse both of them and now I’m done with my breasts. The problem? Covid! I weaned my younger son back in May to prepare for surgery. The doctors wanted me to wait at least six months from weaning to have surgery to avoid infection. I had a clean MRI in October and since then, I have been trying to get a surgery on the books. It’s very frustrating. I have switched doctors a few times and now I have my dream team but no definite date. We are trying to get approved for January 19th but due to Covid, the doctor needs special permission from the chair of surgery at the hospital. So I wait. And wait. And wait more. My fingers are crossed for good news. I just want to put this part of my BRCA story behind me.
Edited to add-about 24 hours after writing this, my surgery date was confirmed for January 19th. So things are really real now!!
Follow my journey at www.brca2mama.com and email me if you want to chat about your journey. I love new friends!
Allison ( . ) ( . )