I’m a certified genetic counselor and the Founder and CEO of My Gene Counsel. Before starting this company I was the founder and director of the Cancer Genetic Counseling Program at Yale for 18 years, and I was also a plantiff in the 2013 BRCA gene patent case that went to the Supreme Court.
Why did you start My Gene Counsel?
When I was at Yale we saw more and more patients who had genetic testing without the help of a certified genetic counselor. Mistakes were being made – like people having surgeries they didn’t need, or people being diagnosed with late cancers because they were told they were at low risk. We also had no way to efficiently recontact our patients about new recommendations and changes in the field. I realized that we needed a scalable, digital form of genetic counseling that would tie to a patient’s test results and keep them (and their physicians) updated over time.
How will this work?
We are starting with BRCA1 and BRCA2 direct-to-consumers this summer. You will be able to come to our page, upload your test results, and get the matching stream of information. Whenever there is an update or a clinical trial for which you may qualify, we notify you. And you, as the consumer, can help us make the product better for the next person who tests BRCA+. You will be a vital part of this solution!
What can BRCAStrong do to support My Gene Counsel?
I will let you know when we launch so that your members can help guide and shape the My Gene Counsel tools. In the meantime, please go to mygenecounsel.com to learn more and follow us on FB, Twitter and/or LinkedIn!